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The SPIN-SSLED Patient Advisory Team is comprised of people living with scleroderma who oversee the Scleroderma Support group Leader EDucation (SPIN-SSLED) Program. Team members are involved with the development, testing, and dissemination of the Program to ensure that the it maximally addresses the needs of scleroderma support group leaders.

Member

After being diagnosed with scleroderm...

Karen Nielsen

Patient Advocate

Geneviève Guillot was born in ...

Geneviève Guillot

Patient Advocate

Ken was diagnosed with Systemic Diffu...

Ken Rozee

Patient Advocate

An educator, public speaker, and lobb...

Amy Gietzen

Patient Advocate

Nancy is a patient advocate for the S...

Nancy Stephens

Patient Advocate

Maureen Sauvé was president of...

Maureen Sauvé

Patient Advocate

Michelle worked as a Parks & Recr...

Michelle Richard

Patient Advocate

Karen Gottesman is both a patient and...

Karen Gottesman

Patient Advocate

Stephen Elrod has been a scleroderma ...

Stephen Elrod

Patient Advocate

Catherine immigrated from the Caribbe...

Catherine Fortuné

Patient Advocate