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The SPIN Advisory Board is comprised of people living with scleroderma, supported by expert consultants. The Advisory Board will (1) review the overall SPIN project and individual SPIN intervention projects and (2) advise the Steering Committee so that SPIN maximally reflects the needs of people with scleroderma and ensures successful knowledge transfer within the scleroderma community as well as with the broader rare disease community.


Catherine immigrated from the Caribbe...

Catherine Fortuné

Patient Advocate

After being diagnosed with scleroderm...

Karen Nielsen

Patient Advocate

Joep Welling is born and raised in th...

Joep Welling

Patient Advocate

Maureen Sauvé was president of...

Maureen Sauvé

Patient Advocate

Catarina Leite (MSc) is a Health Psyc...

Catarina Leite


Karen Gottesman is both a patient and...

Karen Gottesman

Patient Advocate

President of the Spanish Scleroderma ...

Alexandra Portales

Patient Advocate

Dominique was born and raised in Fran...

Dominique Godard

Patient Advocate

Geneviève Guillot was born in ...

Geneviève Guillot

Patient Advocate