Publications 2018

ARTICLES IN PROFESSIONAL OR CULTURAL JOURNALS 2018

1. SPIN – Initiative zur Entwicklung von Unterstützungsprogrammen für Sklerodermie. Scleroderma Liga e.V. Website News,  Scleroderma Liga e.V. December 14, 2018.

2. Le SPIN-SHARE à la Conférence nationale sur la sclérodermie: Lancement de programmes de soutien axés sur les patients sclérodermiques/The SPIN-SHARE at the National Scleroderma Conference: Moving forward with patient-centrered support programs. Le Bulletin, Sclérodermie Québec, Fall-Winter 2018.

3. SPIN-SHARE at the National Scleroderma Conference: Moving Forward with Patient-centered Support Programs. Scleroderma Canada Newsletter, Scleroderma Canada. Winter 2018.

4. SPIN launches online platform to provide self-management tools. Lady Davis Institute Research Newsletter, the Lady Davis Institute for Medical Research. November 2018.

5. Scleroderma Patient-centered Intervention Network (SPIN): An International Patient-researcher Partnership. IMHA on the move! The Institute of Musculoskeletal Health and Arthritis, Canadian Institutes of Health Research, October 2018.

6. Carrier ME, Cumin J. Le projet SPIN-SHARE: Accessibilité gratuite aux programmes de soutien en ligne du RIPS/The SPIN-SHARE project: Making SPIN’s online support programs accessible for free. Le Bulletin, Sclérodermie Québec, Spring-Summer 2018.

Publications 2017

ARTICLES IN PROFESSIONAL OR CULTURAL JOURNALS 2017

1. Rice DB, Jiménez Carboni A, Cañedo Ayala M, Thombs BD. Une étude du RIPS pour soutenir les aidant(e)s naturel(le)s/The Experience of Informal Caregivers: SPIN-CARE Supporting Caregivers. Le Bulletin, Sclérodermie Québec, Winter 2017.

2. Thombs BD, Kwakkenbos L, Carrier ME. Le RIPS a le vent dans les voiles. Le Petit Journal, Association des sclérodermiques de France. September 2017.

3. Thombs BD, Kwakkenbos L, Carrier ME. Le RIPS a le vent dans les voiles. Le Bulletin, Sclérodermie Québec. March 2017.

Publications 2015

ARTICLES IN PROFESSIONNAL OR CULTURAL JOURNALS 2015

1. Carrier ME, Kwakkenbos L. Introducing the Scleroderma Patient-centered Intervention Network (SPIN ) Co-Director and Coordinator. The Scleroderma Reporter. Scleroderma Society of Ontario. Spring/Summer 2015

2. Gumuchian S, Delisle VC, Thombs BD. Illuminating the support group experience: Helping leaders get the support they need. The Scleroderma Reporter. Scleroderma Society of Ontario. Spring/Summer 2015.

Publications 2014

ARTICLES IN PROFESSIONAL OR CULTURAL JOURNALS 2014

1.Thombs BD. Towards better care for scleroderma: An update from the Scleroderma Patient-centered Intervention Network. The Scleroderma Connection, Scleroderma Society of Canada, Fall 2014, p. 6-7.

 

Publications 2013

ARTICLES IN PROFESSIONAL OR CULTURAL JOURNALS 2013

1. Sauve M. Rare but not alone: the new face of rare disorders in Canada. National Post, Oct 2013 

2. Milette, Katherine, An Update on SPIN’s Online Self-Management Program, The Scleroderma Connection, Scleroderma Society of Canada, Winter 2013, p.4. 

3. The Scleroderma Patient-centered Intervention Network (SPIN), Scleroderma Manitoba, Fall 2013. 

4. International Collaboration Working to Improve the Lives of Those Living with Scleroderma, Scleroderma Voice, Fall 2013, p.13-14. 

5. Frketich J. Scleroderma: A ‘Lonely and frightening’ disease, Hamilton Spectator, September 26, 2013.

6. Milette K. An Update on SPIN’s Online Self-Management Program, Sclerodata, Scleroderma Association of BC, Spring 2013, p. 9. 

7. SPIN Research Group, Coping with Stress, The Scleroderma Connection, Scleroderma Society of Canada, Spring 2013, p.4. 

8. The Scleroderma Patient-centered Intervention Network (SPIN), Scleroderma Association of Manitoba, February 2013.  

Publications 2012

ARTICLES IN PROFESSIONAL OR CULTURAL JOURNALS 2012

1. Jewett,L. The Scleroderma Patient-centered Intervention Network (SPIN), Sclerodata, Scleroderma Association of BC, Summer 2012, p.7. 

2. Thombs B.The Scleroderma Patient-centered Intervention Network (SPIN), Scleroderma Report, Scleroderma Society of Ontario Newsletter, Fall 2011-Winter 2012.