SPIN toolkits are online self-guided programs designed to help people with scleroderma cope with everyday problems. Each of SPIN’s toolkits is developed by an expert team of healthcare providers, researchers, and scleroderma patients, and then tested via clinical trials before being released to the public.

The toolkits include various features like:
- Evidence-based information and techniques to help manage disease-related problems
- Educational videos featuring scleroderma experts
- Videos of people with scleroderma speaking about their experiences with the disease
- Interactive worksheets
- Goal setting and progress tracking features

Each toolkit targets a different area related to the disease – check out the descriptions below!

Upcoming Toolkits

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SPIN-HAND for hand function

The SPIN Hand Function (SPIN-HAND) toolkit provides exercises to improve hand function with sections to help you develop a personalized program, set goals, and track your progress. Instructional videos demonstrate how to perform each exercise properly with pictures to illustrate common mistakes.

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SPIN-SELF for self-management

The SPIN Self-Management (SPIN-SELF) toolkit provides essential knowledge and coping skills to help better manage day-to-day problems in scleroderma. Each of the 9 modules provides information about a different area (pain, fatigue, sleep, etc.) and teaches self-management techniques that you can implement at home.

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SPIN-COACH for appearance changes

The SPIN Coping with Appearance CHanges (SPIN-COACH) Toolkit focuses on the impact of appearance changes in scleroderma, with two modules that help (1) manage negative appearance-related thinking and (2) build confidence in social situations. Additional modules focus on intimacy, as well as makeup and clothing in scleroderma. 

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SPIN-COPE for emotions

The SPIN COping with Positive Emotions (SPIN-COPE) toolkit consists of 7 modules, each addressing a different aspect of coping with the emotional impact of scleroderma, such as managing anger, worry, and depressive thinking.