Announcing the Launch of SPIN-SHARE and the SPIN-HAND Toolkit

  • | Apr 30, 2020

The SPIN Team is please to announce the launch of SPIN-SHARE, a central hub where you can access all the online SPIN toolkits as they become available! Instructions on how to access SPIN-SHARE and our first toolkit, the SPIN-HAND toolkit are below!


Help with scleroderma research by joining a SPIN Patient Advisory Team!

  • | Sep 25, 2019

SPIN periodically seeks individuals with scleroderma to help with our new research projects. Please read the information below to learn more. If you think you might be interested and able to commit the time, continue to the next page to provide some brief information about yourself.


SPIN at the 2019 Scleroderma Foundation Patient Education Conference in Chicago

  • | Jul 29, 2019

Last week, SPIN members had the pleasure of attending the Scleroderma Foundation’s annual Patient Education Conference in Chicago, where hundreds of people in the scleroderma community congregated to attend educational sessions led by leading scleroderma researchers and healthcare professionals.

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Watch SPIN Director Dr. Brett Thombs' Rare Disease Day Presentation

  • | Apr 01, 2019

On Rare Diseases Day in February, SPIN Director Dr. Brett Thombs spoke about some of the major challenges involved in rare disease research and how SPIN is working to address these at an event hosted by the Rare Disease Interest Group of the Medical Students’ Society of McGill University. Click below to watch the whole presentation!

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SPIN Cohort recruitment has started in Australia!

  • | Mar 13, 2019

The SPIN Cohort is expanding to Australia! We’re pleased to announce that St. Vincent's Hospital in Melbourne has joined SPIN as the newest clinical site for recruiting scleroderma patients for the SPIN Cohort.

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Recap of Rare Disease Day 2019

  • | Mar 07, 2019

On Rare Diseases Day last week, SPIN members were proud to spread the message about scleroderma research.