working together

Update on the SPIN Cohort study

  • | Feb 25, 2015

Enrolment in the SPIN Cohort is going very well. We started almost a year ago, in March 2014, with a couple of pilot-sites, and after smoothing out some bumps along the way, we now have 23 sites enrolling participants for our study! Currently, there are almost 600 individuals with scleroderma enrolled in the Cohort, and a little over 400 have completed their baseline measures. We are very thankful to the enrolling physicians, their teams, and of course the participants who take the time to complete the measures online every 3 months.

DSC_0016 (2)

Dr. Linda Kwakkenbos is the new Co-Director of SPIN

  • | Nov 07, 2014

During SPIN’s Annual Meeting in Anaheim, in the presence of all SPIN members, Dr. Kwakkenbos was named SPIN’s Co-Director by the Steering Committee, a title that reflects her hard work and dedication to SPIN.

2

Body Image Team Meeting

  • | May 09, 2013

Discussions to gain more insight into patients’ perspectives on the SPIN Body Image intervention. Furthermore, the general framework of the intervention was discussed, as well as examples of engaging virtual elements. It was also discussed how elements from these general interventions could be used and adapted for people with scleroderma.