An educator, public speaker, and lobbyist, Amy Gietzen advocates for scleroderma awareness and supports her fellow patients in many ways. She leads several online communities, serving as Virtual Support Group Leader and Board Member for Scleroderma TriState, contributing to the digital health community the Mighty, and founding her own blog about scleroderma. In addition, she works with the Scleroderma TriState Chapter in her home town fundraising for Scleroderma Research and Education.